Bill Detail
An Act respecting a national framework on sickle cell disease
This enactment provides for the development of a national framework to support Canadians with sickle cell disease (also known as sickle cell anemia or drepanocytosis), their families and their caregivers.
✦ AI Summary
Bill S-280 proposes the creation of a national framework to support Canadians affected by sickle cell disease. This genetic blood disorder, which can cause severe pain and shorten lifespan, disproportionately affects certain populations and is not widely understood. The framework will aim to improve training for healthcare professionals, advance research through a national network and registry, establish treatment standards, and ensure equitable access to screening and care.
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Legislative Timeline
2023-11-07
First reading
✦ AIBill proposes a national framework for sickle cell disease.
Current
In committee (Senate)
✦ AIBill is currently being reviewed by a Senate committee.