Bill Detail
An Act respecting National Diffuse Intrinsic Pontine Glioma Awareness Day
This enactment amends the Department of Employment and Social Development Act to establish the Employment Insurance Council. It also amends the Employment Insurance Act in respect of the Council.
Bill S-244 proposes to establish May 17th of each year as National Diffuse Intrinsic Pontine Glioma Awareness Day in Canada. Diffuse intrinsic pontine glioma (DIPG) is a rare and aggressive brainstem tumor that primarily affects young children, typically between five and seven years old. The disease is currently inoperable, incurable, and fatal, with no significant improvements in prognosis or treatment for over 40 years.
This bill aims to raise public awareness about DIPG across Canada. By increasing awareness, the government hopes to encourage greater public and private investment in research for better treatments and improved outcomes for affected children. The day also serves to honour the memory of those who have lost their lives to this devastating disease.